Adult Congenital Heart Association - ACHA is a national organization for adults, and adolescents, with congenital heart disease (CHD). The purpose of ACHA is to educate the public, adults with CHD, and the medical community about adult congenital heart issues through the development of forums, newsletters, support groups and other methods of public information.   

American Heart Association - The American Heart Association is nonprofit organization, whose mission is to reduce disability and death from cardiovascular diseases and stroke. Volunteers and staff, work to meet these goals through supporting research, providing resources, education and support to those with heart disease or those at risk, and acting as national advocate. For more information:

American Stroke Association - Affiliated with the American Heart Association, this group provides information and support to over 1,850 stroke groups and more than 150,000 stroke survivors, caregivers and healthcare professionals throughout the country. For more information:

CongenitalHeartDefects.com - Information and resources for people with CHD, including definitions of medical terms, hospitals caring for people with CHDs, links to support groups, articles regarding CHDs, and resources for the CHD community.

Hypertrophic Cardiomyopathy Association (HCMA) - The HCMA was established in 1996 as a support organization focused at providing information and support to those with HCM, their families and the medical community. For more information:

Journal of the American Medical Association (JAMA)  

Medscape  

Mended Hearts, Inc. - Mended Hearts, affiliated with the American Heart Association, is a support group for heart patients, families and caregivers. A network of people who have heart disease or families of patients are able to talk to patients and family members going through the same experience. Available in 260 cities across the U.S. and in Sudbury, Ontario, Canada, the motto of Mended Hearts is, "It’s great to be alive – and to help others." For more information:

Society of Thoracic Surgeons (STS) - Patient Information  

Sudden Arrhythmia Death Syndromes (SADS) Foundation - SADS is a nonprofit organization, established for the purpose of helping to prevent sudden and unexpected cardiac death in children and in young adults. The SADS Foundation is committed to supporting families and individuals with genetically mediated cardiac arrhythmias through education, research, and advocacy. For more information:

TRIO - Transplant Recipient International Organization - TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors. For more information: